Improving Data Infrastructure for Intellectual and Developmental Disabilities
July 26, 2022, marked the 32nd anniversary of the Americans with Disabilities Act (ADA). In celebration of this landmark civil rights law, the Office of the Assistant Secretary for Planning and Evaluation (ASPE) published a report called Improving Data Infrastructure for Patient-Centered Outcomes Research for People with Intellectual and Developmental Disabilities (IDD).
In 2017, there were 7.4 million individuals with IDD in the United States. Individuals with IDD often receive care in both traditional health care settings like hospitals,
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